Better laws better governance
  • About
    • Cover image for about page shpwing Vidhi's Library

      About Us

    • Vidhi fellows

      People

    • Board of Directors

    • Two people shaking hands

      Patrons

    • Vidhi Charter

    • Impact Report

  • Commitments
    • Illustration for Drafting-Good-Laws

      Drafting Good Laws

    • Illustration for Strengthening-Public-Institutions

      Strengthening Public Institutions

    • Realising Fundamental Rights

  • Regions
    • Karnataka

    • Maharashtra

    • Tamil Nadu

  • Centres
    • altr

      Centre for Applied Law and Technology Research (ALTR)

    • Charkha

    • Vidhi Bankruptcy Research Programme

  • Suggestions

  • Topics
    • Climate and Ecosystems

    • Competition

    • Constitution

    • Corporate Law and Financial Regulation

    • Crime & Punishment

    • Disability (Inclusion & Access)

    • Disability & Inclusion

    • Education

    • Fintech

    • Gender and Sexuality

    • Health

    • Impact Collective

    • Insolvency and Bankruptcy

    • JALDI (Judicial Reforms)

    • Kautilya Societies

    • Land and Property Rights

    • Law and Technology

    • Law, Finance and Development

    • Legal Design and Regulation

    • Mission Statement

    • Nyaaya

    • Research Director’s Office

    • Samvidhaan Fellowship

    • Sanitation and Waste Management

    • Tax

    • The Green Hour

    • Urban Governance

    • Lest We Forget

  • Research
  • In Focus
      Research
    • Making the Digital Eco-System Disabled Friendly

    • Tax Carve Outs Under Bilateral Investment Protection Agreements

    • Multimedia
    • Decoding Exclusion Episode 7 with Madhukar Banuri

    • Launch of 'Heads Held High: Salvaging State Governors for 21st Century India'

    • Blog
    • Pathaan Order: Implications on Access to Entertainment for Persons with Disabilities

    • Green Budget 2023-24 and the ‘Green’ Shortcomings

    • Impact
    • A Fourth Way - Drafting a Data Protection Law for India and the Global South

    • Reforming Tribunals and Expediting Justice Delivery

  • Podcasts
  • Videos
  • Impact
  • Blog
  • Events
  • Subscribe
  • Logo
  • About
    • About Us
    • People
    • Alumni
    • Board of Directors
    • Patrons
    • Impact Report
    • Lest We Forget
    • Vidhi Charter
    • Contact
    • Careers
  • Work
    Commitments
    • Drafting Good Laws
    • Realising Fundamental Rights
    • Strengthening Public Institutions
    Regions
    • Karnataka
    • Maharashtra
    • Tamil Nadu
    Centres
    • Centre for Applied Law and Technology Research (ALTR)
    • Charkha
    • Vidhi Bankruptcy Research Programme
  • Library
    Library
    • Research
    • Impact
    • Events
    • Blog
    • Videos
    • Podcasts
  • Research
    • Research
    • Making the Digital Eco-System Disabled Friendly

    • Tax Carve Outs Under Bilateral Investment Protection Agreements

    • Multimedia
    • Decoding Exclusion Episode 7 with Madhukar Banuri

    • Launch of 'Heads Held High: Salvaging State Governors for 21st Century India'

    • Blog
    • Pathaan Order: Implications on Access to Entertainment for Persons with Disabilities

    • Green Budget 2023-24 and the ‘Green’ Shortcomings

    • Impact
    • A Fourth Way - Drafting a Data Protection Law for India and the Global South

    • Reforming Tribunals and Expediting Justice Delivery

Suggestions

Home // ENSURING PROTECTION OF DIGNITY AT THE END OF LIFE
07
07

ENSURING PROTECTION OF DIGNITY AT THE END OF LIFE

Working with individuals, hospitals and pediatric specialists to practically implement advance medical directives and advocate for a model end of life care law

Context

Despite the Supreme Court recognising advance medical directives – legal instruments that allow persons to refuse life sustaining treatment at a time in the future when they might lose decision-making capacity – as legally valid documents in 2018, there have been very few people who have been able to get their advance medical directives executed.

This is because the procedure prescribed by the Supreme Court is onerous and also because the authorities identified under the judgment to execute these directives (Judicial Magistrates of the First Class) are not aware of their obligations under the judgment.

Building on its intervention in the Supreme Court petition which led to the 2018 judgment, Vidhi has continued to deepen its engagement in the field of end of life care by providing practical solutions to help patients realise their rights to autonomy and dignity, and to enable doctors and hospitals to practise medicine ethically.

In particular, Vidhi has: 

  • Assisted in the actual execution of an advance medical directive by a young student and helped set a precedent for their execution by others.
  • Helped the Manipal Group of Hospitals develop their protocol when families request a discharge against medical advice. 
  • Given its inputs to the Bai Jerbai Wadia Children's Hospital, Mumbai about a paediatric end of life care policy.

Execution of advance medical directives

Vidhi helped a young engineering student from Ghaziabad, who feels passionately about this issue, execute his advance medical directive. Dhvani Mehta, who leads Vidhi's team on health research, assisted the student in making an administrative application before the District Judge, Ghaziabad, asking him to designate a Judicial Magistrate before whom the advance medical directive could be executed. The judge passed an order accordingly, and the student was able to use this order to execute his advance medical directive. Other persons wishing to execute their advance medical directives can now adopt the same route.

'Living will is extremely important for me as it effectively prevents me from any kind of long and intolerable suffering. I didn't know how to make a living will, that's why it took 10-12 visits to court. I am among the very few people who successfully executed a living will in India. I received a great amount of help from Dhvani Mehta of the Vidhi Centre for Legal Policy. I am greatly thankful to her for helping me out.' — Keshav Anand,
STUDENT, GHAZIABAD

Discharge against medical advice

In India, families often request that medical treatment be stopped abruptly. This could be because of financial constraints, a lack of trust in the treating team, or a desire that the patient receive end of life care at home. This poses a dilemma for doctors, who might be torn between their duty to act in the best interests of the patient and to continue to provide care, on the one hand, and to respect the autonomy of patients and their families to refuse medical treatment, on the other.

The sub-optimal solution that is currently devised is to discharge such patients against medical advice. In such cases, not only is life-sustaining medical treatment withdrawn, but comfort care is also taken away, leaving patients to die without appropriate medical management, and causing distress to their family members or friends. Although hospitals use 'discharge against medical advice' as a tool to avoid legal liability, it often ends up leaving them vulnerable to more litigation from relatives who are inevitably upset about the ultimate outcome of such discharge.

To address this, the Kasturba Hospital, Manipal, initiated the process of framing a more sensitive policy that would help their doctors deal with instances where demands are made to end medical treatment. Vidhi gave its legal inputs to the hospital on developing this protocol to ensure that its doctors could act in an ethically responsible manner without fear of legal liability.

'The Kasturba Medical College and the Manipal Academy of Higher Education are very grateful for the contribution of the Vidhi Centre for Legal Policy towards the development of procedural guidance on limiting life-sustaining treatment.' — Dr Naveen Salins,
PROFESSOR AND HEAD, DEPARTMENT OF PALLIATIVE MEDICINE AND SUPPORTIVE CARE, KASTURBA MEDICAL COLLEGE, MANIPAL ACADEMY OF HIGHER EDUCATION

End of life care for children

The question of end of life care in children is a complex one that must be handled very sensitively. The Supreme Court's judgment in Common Cause v Union of India, which laid down the law on withholding and withdrawing life-sustaining treatment, does not provide any specific guidance related to children. However, there are pioneering hospitals like the Bai Jerbai Wadia Children's Hospital in Mumbai that are taking the progressive step of developing a humane and ethically responsible end of life care policy for their pediatric patients.

Vidhi has had several rounds of conversation with specialists at this hospital to understand their requirements and concerns and to advise them on their end of life care policy. Policies like this will have a significant impact on pediatric intensive care and will enable medical professionals to have difficult conversations with families in a
sensitive way.

Impact

By assisting a young student execute his advance medical directive, by helping the Manipal Group of Hospitals develop their protocol to handle cases where families request a discharge against medical advice, and by giving its inputs to the Bai Jerbai Wadia Children's Hospital, Mumbai about a pediatric end of life care policy, Vidhi is ensuring that protecting dignity at end of life is becoming a lived reality in India.

We use cookies to understand and improve our website. You can disable cookies at any time by following the steps listed in our cookie policy. To know more, read our privacy policy
Cookie settingsAccept
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT
Better laws better governance

The Vidhi Centre for Legal Policy is an independent think-tank doing legal research to make better laws and improve governance for the public good.

Subscribe
About
  • About Us
  • People
  • Alumni
  • Board of Directors
  • Patrons
  • Impact Report
  • Lest We Forget
  • Vidhi Charter
  • Contact
  • Careers
Library
  • Research
  • Impact
  • Events
  • Blog
  • Videos
  • Podcasts
Centres
  • Centre for Applied Law and Technology Research (ALTR)
  • Charkha
  • Vidhi Bankruptcy Research Programme
Regions
  • Karnataka
  • Maharashtra
  • Tamil Nadu
Commitments
  • Drafting Good Laws
  • Realising Fundamental Rights
  • Strengthening Public Institutions
  • Terms and Conditions
  • Privacy Policy
© 2025 Vidhi Centre for Legal Policy
Logo
https://offerkey.net/ https://incagoexpeditions.com/ https://sparshclinicraipur.com/ https://elitemart.com.bd/ https://mbcontrol.com/ https://feeportal.eastpointschooldelhi.edu.in/ https://viccigermany.de/ https://svccdigital.in/ https://www.szyidaxing.com/ https://www.coresource.co.in/ https://axykno.com/ https://electronicgears.com.pk/ https://uddanjaneya.org/ https://softeksurya.com/